PARENTS` EMOTIONAL SUPPORT DURING THE INTEGRATION PROCESS OF CHILDREN WITH SPECIAL EDUCATIONAL NEEDS
Keywords:
emotional support, emotional intelligence, support group,Abstract
Parents of children with disabilities may be in a great deadlock and the way they
react is very different from one person to another. Thus, various emotional states
and reactions may occur, such as shock, confusion, anxiety, uncertainty,
frustration, distrust of diagnosis, denial, anger, fury, despair, negotiation, fear,
self-blame, accusation of destiny and / or the others, isolation, rejection,
depression, acceptance, resignation, and struggle. Often these emotions are not
recognized and expressed, which creates multiple difficulties that can be
overcome by improving human relationships in a supportive psychotherapeutic
intervention. This research aims at identifying their needs and emotional states.
The results obtained highlight the need to implement support groups for these
parents, groups that focus on the development of emotional abilities and on the
most effective strategies for maintaining constructive interpersonal relationships
in the process of integration of children with special educational needs.
References
Bailey, D. B., Golden, R. N., Roberts, J., & Ford, A. (2007). Maternal depression and
developmental disability: Research critique. Mental Retardation and Developmental
Disabilities Research Reviews, 13(4), 321–329.
Baker, B. L., Blacher, J., & Olsson, M. B. (2005). Preschool children with and without
developmental delay: Behavior problems, parents’ optimism and well-being. Journal of
Intellectual Disability Research, 49(8), 575–590.
Blacher, J., & Baker, B. L. (2007). Positive impact of intellectual disability on families.
American Journal on Mental Retardation, 112(5), 330–348.
Bourke-Taylor, H., Pallant, J. F., Law, M., & Howie, L. (2012). Predicting mental health
among mothers of school-aged children with developmental disabilities: The relative
contribution of child, maternal and environmental factors. Research in Developmental
Disabilities, 33(6), 1732–1740.
Brotheridge, C.M., Lee, R.T. (2003). Development and validation of the Emotional Labour
Scale. Journal of Occupational and Organizational Psychology, 76, 365-379.
Browne, D. T., Rokeach, A., Wiener, J., Hoch, J. S., Meunier, J. C., & Thurston, S. (2013).
Examining the family-level and economic impact of complex child disabilities as a function
of child hyperactivity and service integration. Journal of Developmental and Physical
Disabilities, 25(2), 181–201.
Carnevale, F. A., Alexander, E., Davis, M., Rennick, J., & Troini, R. (2006). Daily living with
distress and enrichment: The moral experience of families with ventilator-assisted children
at home. Pediatrics, 117(1), 48–60.
Caruso, D. R., & Salovey, P. (2012). The emotionally intelligent manager – how to develop
and use the four key emotional skills of leadership. Bucharest: Business Tech International
Press.
Chu, K. H.-L., & Murrmann, S. K. (2006). Development and validation of the Hospitility
Emotional Labor Scale. Tourism Management, 27, 1181 - 1191.
Dabrowska, A., & Pisula, E. (2010). Parenting stress and coping styles in mothers and fathers
of pre-school children with autism and Down syndrome. Journal of Intellectual Disability
Research, 54(3), 266–280.
Dembo, T. (1984). Sensitivity of one person to another. Rehabilitation Literature, 45, 90–95.
Ekas, N. V., Lickenbrock, D. M., & Whitman, T. L. (2010). Optimism, social support, and
well-being in mothers of children with autism spectrum disorder. Journal of Autism and
Developmental Disorders, 40(10), 1274–1284.
Emerson, E., Hatton, C., Llewellyn, G., Blacker, J., & Graham, H. (2006). Socio-economic
position, household composition, health status and indicators of the well-being of mothers
of children with and without intellectual disabilities. Journal of Intellectual Disability
Research, 50(12), 862–873.
Emerson, E., McCulloch, A., Graham, H., Blacher, J., Llwellyn, G. M., & Hatton, C. (2010).
Socioeconomic circumstances and risk of psychiatric disorders among parents of children
with early cognitive delay. American Journal on Intellectual and Developmental
Disabilities, 115(1), 30–42.
Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents
of children diagnosed with autism spectrum disorder. Sociology of Health & Illness, 31(7),
–1027.
Featherstone, H. (1980). A difference in the family: Living with a disabled child. New York:
Penguin.
Francis, A. (2012). Stigma in an era of medicalisation and anxious parenting: How proximity
and culpability shape middle-class parents’ experiences of disgrace. Sociology of Health &
Illness, 34(6), 927–942.
Gill, J., & Liamputtong, P. (2011). Being the mother of a child with Asperger’s syndrome:
women’s experiences of stigma. Health Care for Women International, 32(8), 708–722.
Glidden, L. M., & Jobe, B. M. (2006). The longitudinal course of depression in adoptive and
birth mothers of children with intellectual disabilities. Journal of Policy and Practice in
Intellectual Disabilities, 3(2), 139–142.
Green, S. E. (2007). We’re tired, not sad: Benefits and burdens of mothering a child with a
disability. Social Science & Medicine, 64(1), 150–163.
Greer, F. A., Grey, I. M., & McClean, B. (2006). Coping and positive perceptions in Irish
mothers of children with intellectual disabilities. Journal of Intellectual Disabilities, 10(3),
–248.
Hardman, M. L., Drew, C. J., & Egan, M. W. (1996). Human Exceptionality: society, school,
and Family. Boston: Allyn and Bacon.
Jones, J., & Passey, J. (2005). Family adaptation, coping and resources: Parents of children
with developmental disabilities and behavior problems. Journal on Developmental
Disabilities, 11, 31–46.
Lightsey, O. R., & Sweeney, J. (2008). Meaning in life, emotion-oriented coping, generalized
self-efficacy, and family cohesion as predictors of family satisfaction among mothers of
children with disabilities. Family Journal, 16(3), 212–221.
Manning, M. M., Wainwright, L., & Bennett, J. (2011). The double ABCX model of
adaptation in racially diverse families with a school-age child with autism. Journal of
Autism and Developmental Disorders, 41(3), 320–331.
McManus, B. M., Carle, A., Acevedo-Garcia, D., Ganz, M., Hauser-Cram, P., & McCormick,
M. (2011). Modeling the social determinants of caregiver burden among families of children
with developmental disabilities. American Journal on Intellectual and Developmental
Disabilities, 116(3), 246–260.
Montes, G., & Halterman, J. S. (2007). Psychological functioning and coping among mothers
of children with autism: A population-based study. Pediatrics, 119(5), 1040–1046.
Muir-Hutchinson, L. (1987). Working with professionals. Exceptional Parent. 17(5), 8–10.
Nastasa, L.E. (coord).(2015).Counseling the family in a deadlock - a psychological and
educational approach. Bucharest: Ed. Eikon.
Nastasa, L.E., & Mindu, S. (2016). Emotional support for teachers who interact with disabled
children’s families. Bulletin of the Transilvania University of Brasov. Series VII: Social
Sciences – Law. 9 (59), 2, 53-64.
Nastasa, L.E., Stroe, E., & Sandu, M. (2017). Managing emotions of specialists who interact
with the social services beneficiaries in M. Milcu, M. Stevens & I. Dahl. Modern Research
In Health,Education And Social Sciences. From Evaluation To Intervention. (pp. 217-226).
Bucuresti: Ed. Universtara.
Olsson, M. B. (2008). Understanding individual differences in adaptation in parents of
children with intellectual disabilities: A risk and resilience perspective. International
Review of Research in Mental Retardation, 36, 281–315.
Olsson, M. B., Larsman, P., & Hwang, P. C. (2008). Relationships among risk, sense of
coherence, and well-being in parents of children with and without intellectual disabilities.
Journal of Policy and Practice in Intellectual Disabilities, 5(4), 227–236.
Plant, K. M., & Sanders, M. R. (2007). Predictors of care-giver stress in families of
preschool-aged children with developmental disabilities. Journal of Intellectual Disability
Research, 51(2), 109–124.
Reichman, N. E., Corman, H., & Noonan, K. (2008). Impact of child disability on the family.
Maternal and Child Health Journal, 12(6), 679–683.
Resch, J. A., Benz, M. R., & Elliott, T. R. (2012). Evaluating a dynamic process model of
wellbeing for parents of children with disabilities: A multi-method analysis. Rehabilitation
Psychology, 57(1), 61–72.
Rodger, S., & Mandich, A. (2005). Getting the run around: Accessing services for children
with developmental co-ordination disorder. Child: Care, Health and Development, 31(4),
–457.
Ruiz-Robledillo, N., & Moya-Albiol, L. (2014). Emotional intelligence modulates cortisol
awakening response and self-reported health in caregivers of people with autism spectrum
disorders. Research in Autism Spectrum Disorders. 8, 1535–1543.
Ryan, S., & Runswick-Cole, K. (2008). Repositioning mothers: Mothers, disabled children
and disability studies. Disability & Society, 23(3), 199–210.
Schutte, N. S., Malouff, J. M., Hall, L. E., Haggerty, D.,J., Cooper, J. T., Golden, C. J., &
Dornheim, L. (1998). Development and validation of emotional intelligence. Personality
and Individual Differences, 25, 167–77.
Seligman, M., & Darling, R.B. (1989). Ordinary families, special children. New York:
Guilford Press.
Seligman, M., & Seligman, D.A. (1980). The professional`s dilemma: learning to work with
parents. Exceptional Parent. 10(5), 511–513.
Singer, G. H. S., & Floyd, F. (2006). Meta-analysis of comparative studies of depression in
mothers of children with and without developmental disabilities. American Journal on
Mental Retardation, 111(3), 155–169.
Smith, L. E., Seltzer, M. M., Tager-Flusberg, H., Greenberg, J. S., & Carter, A. S. (2008). A
comparative analysis of well-being and coping among mothers of toddlers and mothers of
adolescents with ASD. Journal of Autism and Developmental Disorders, 38(5), 876–889.
Totsika, V., Hastings, R. P., Emerson, E., Lancaster, G. A., & Berridge, D. M. (2011). A
population-based investigation of behavioral and emotional problems and maternal mental
health: Associations with autism spectrum disorder and intellectual disability. Journal of
Child Psychology and Psychiatry, 52(1), 91–99.
Trute, B., Benzies, K. M., Worthington, C., Reddon, J. R., & Moore, M. (2010). Accentuate
the positive to mitigate the negative: Mother psychological coping resources and family
adjustment in childhood disability. Journal of Intellectual and Developmental Disability,
(1), 36–43.
Trute, B., Benzies, K., & Worthington, C. (2012). Mother positivity and family adjustment in
households with children with a serious disability. Journal of Child & Family Studies,
(3), 411–417.
Trua, C. (2012). The management of emotions in education. Antecedents and strategies.
Brasov: Transilvania University Press.
Yirmiya, N., & Shaked, M. (2005). Psychiatric disorders in parents of children with autism: A
meta-analysis. Journal of Child Psychology and Psychiatry, 46(1), 69–83.
Ylven, R., Bjorck-Akesson, E., & Granlund, M. (2006). Literature review of positive
functioning in families with children with a disability. Journal of Policy and Practice in
Intellectual Disabilities, 3(4), 253–270.
